ALLANY’S STORY

My name is Allany and my experience with epilepsy has… let’s say less than a chain of unfortunate events.  I was diagnosed at 14 years old, only a couple of weeks before my freshman year in high school. Also, it does not help with constant little headaches throughout the day, which increases my anxiety about having a seizure; especially in public. Honestly, I do not remember all the names of the medications I have taken in the past. I know I should remember the names because of my epilepsy journal, but… of course, I lost it years ago. Even with me being more vocal now about my feelings, I still feel embarrassed whenever I have one of those emotional days and won’t bother anyone. I have learned that once you accept that epilepsy is here for life and realize that it isn’t who you are, life becomes somewhat easier (not completely but it helps you not be in a box), and a healing process can begin. I’ve learned it is okay to express your emotions, and holding everything in makes it worse not only emotionally but physically. 

Allany

Kind words you would like to share with a parent or someone newly diagnosed:
Parents be patient with your child and realize they don’t have the answers as many more than you do. Be there for the person whether it’s letting them cry or helping them understand they’re still them and not the epilepsy. Research and ask questions . Newly diagnosed-research, find support groups, and take time for yourself (the news can be hard to hear at first) remember you’re a human, and epilepsy doesn’t have your love.

Connect with Allany:
Instagram: diaryoaepileptic
Bluesky: diaryofanepileptic
Lemon8: diaryofanepilepti
TikTok: diaryofanepilepti
Twitter: DiaryEpileptic
Threads: diaryoaepileptic
YouTube: Diary of an Epileptic