Tiffany’s Story

My journey with epilepsy began at the age of 16 with my first seizure, but it wasn’t until I was 22—just four months into my marriage—that I experienced my second seizure. That moment changed everything. After a series of tests, I received a diagnosis that I didn’t fully understand: epilepsy.

At the time, I knew nothing about seizures or the condition I now live with. I was scared and felt isolated, as I didn’t know anyone else with epilepsy. But instead of letting fear take over, I turned to research, diving into resources to better understand what was happening to me. I also began connecting with others in online communities who shared similar experiences.

Those connections and conversations inspired me to raise awareness about epilepsy and support others like me. I founded The Epilepsy Network (TEN), an online community where people affected by epilepsy can find resources, share their stories, and connect. I also started my blog, Rise Above Epilepsy, where I share helpful tips, personal experiences, and resources to empower others navigating life with epilepsy.

For over a decade, I’ve been dedicated to advocating for the epilepsy community, sharing my journey on platforms like Facebook, Instagram, X, and TikTok. Through this work, I’ve found my purpose: to educate, encourage, and inspire.


Kind words you would like to share with a parent or someone newly diagnosed:
“If I could share one piece of advice with someone newly diagnosed, it would be this: Never be afraid to ask for help. Lean on your family, friends, and even online communities. You are not alone in this journey. Together, we can rise above epilepsy.”

Connect with Tiffany K.:
Instagram: @tiffanykairos
Website: https://riseaboveepilepsy.com/