Zara’s Story

Hey friends! My name is Zara and my epilepsy journey began on June 8th, 2024 at the age of 21. My first seizure happened around 1:30 in the morning after working backstage on a local theatre production and while watching movies with my mom like I always do over the summer. 

My mom knew exactly what to do because my aunt also has epilepsy. We called paramedics and I spent most of that morning in the emergency room and was later discharged and referred to a neurologist, where I was diagnosed with epilepsy. 

Since my initial diagnosis I have been put on medications and have changed medications numerous times, trying to find the one that works best for me. I have had at least one seizure each month and all my seizures except one have happened after 7:30 pm. When I have a seizure I do not remember up to 2-3 hours before and am very out of it afterwords, and have only had known auras for 2 of my seizures.

As much as epilepsy has been a challenge in my life it has in no way stopped me from being the outgoing, social, active person I have always been. I am currently a senior in college majoring in Elementary Education and am a member of my universities color guard, and yearbook clubs. 

I am still learning each and everyday how to navigate this “new normal” and am in no way an expert in epilepsy. This is just my story and I am learning day by day. Some days are better than others but I know I will be okay. 

Kind words you would like to share with a parent or someone newly diagnosed:
If you are a parent of someone with epilepsy or someone newly diagnosed I want you to know you are not alone. It can feel like a lonely place at times but there are so many people living with epilepsy daily and so many people are willing to help, talk or just be a friendly face. Epilepsy is a part of you but it does not define you. You are strong and you are loved. You got this!

Connect with Zara:
If you ever want to talk feel free to DM me on my Instagram and I will get back to you as soon as I can.
Instagram: @thelensofz