Gracie’s Story

As told by her Mom, MaryKate.

Two years ago, our world got rocked when our daughter Gracie was diagnosed with epilepsy. She was just two years old — still our bright, giggling little girl — and we had just welcomed her baby sister, Julia. 

To this day Gracie continues to fight with everything she has. With intractable epilepsy, comes lots of trial and error.  Medications, nutrition plans, the keto diet — we’ve tried them all. Each time a treatment doesn’t work, we grieve a little, gather ourselves, and then we keep fighting. 

She is now four years old and a total force of nature. She’s brave, sassy, kind, and somehow — even through everything — never loses her smile. Epilepsy touches nearly every aspect of her life, but it has never dimmed her spirit. If anything, it has revealed her strength in ways we never imagined. And in ways her doctors never imagined. 

She is a light in the dark. She is teaching us all what true resilience is. 

Right by her side through it all are Julia and her baby brother, Tommy. They have grown up in exam rooms, therapy sessions, and EEG labs. They are her constant cheerleaders, her protectors, and the quiet witnesses to her toughest moments.

Our fight is still going. It’s hard, it’s exhausting, and it’s full of unknowns. But we are determined. Her courage fuels ours. 

Kind words you would like to share with a parent or someone newly diagnosed:
To Other Families Walking This Road: If your child is just beginning their epilepsy journey, or you’re somewhere deep in the trenches: know that you are not alone.

There is a community out here, walking with you. Celebrate even the smallest victories — because they matter. 

They will teach you about strength, hope, and resilience in ways no one else can. 

Connect with Gracie’s Mom, MaryKate:
Instagram: @stateofgrace.mi

Feel free to reach out to us! 
We are always happy to help in any way we can or be a listening ear:)